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22 June, 2019 00:00 00 AM / LAST MODIFIED: 22 June, 2019 12:50:36 AM
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Managing thalassaemia

FOR REDUCING THE NUMBER OF THALASSAEMIA PATIENTS, IT IS CRUCIAL TO CREATE AWARENESS AMONG PEOPLE ABOUT WHEN A CHILD WITH THALASSAEMIA IS BORN

It is worrying that while the number of thalassaemia patients is increasing but treatment options in the country are limited and costly. It is hard to get by the real statistics, but according to an estimate, every year around 7000 to 14000 children are born with this congenital blood disorder that is mostly treated by blood transfusion.

The children born to rich patients can get blood transfusion rather easily, but it is for the children born to poor parents, managing the disease becomes harder. For safe blood transfusion, a patient needs an amount between Tk. 10,000 to 40,000 every month. And a thalassaemia patient needs to take healthy blood for life long. Obviously, poor parents find it difficult to save their children suffering from thalassaemia.

The Allegenic Bone Marrow Transplant is another option, but it is very costly. Still, it depends on matching of bone marrow tissue with the patient's brothers or sisters. Moreover, there is no Allegenic Bone Marrow Transplant facility in Bangladesh. This option is available to only the richest among the patients who can go to different country where it is available. So, in Bangladesh poor thalassemia patients are fated to meet death. There is a Thalassaemia Foundation Hospital in the capital, but it is failing to give patients treatment at an affordable price to the poor patients. Families that have a thalassaemia patient are becoming paupers for treating the patient.

For helping these poor patients, the government should be more generous. The richer section of society also needs to come forward to help poor patients manage the disease. Expert in the field is right to point out that each government hospital, including the Dhaka Medical Hospital, should have a thalassaemia centre and one-stop service for them like the one Dhaka Shishi Hospital at Shyamoli.

For reducing the number of thalassaemia patients, it is crucial to create awareness among people about when a child with thalassaemia is born. People need to know that if one member of a couple has hemoglobin E trait (benign), and the other has beta thalassemia trait (benign also), there is a 25 per cent chance with each pregnancy that their child will co-inherit both traits. This leads to a disease called hemoglobin E/beta thalassemia in that child. That is why screening of blood is vital before marriage for persons with E or beta traits. The government needs to make available the facility of screening these traits in all major public hospitals of the country.

 

 

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Editor : M. Shamsur Rahman

Published by the Editor on behalf of Independent Publications Limited at Media Printers, 446/H, Tejgaon I/A, Dhaka-1215.
Editorial, News & Commercial Offices : Beximco Media Complex, 149-150 Tejgaon I/A, Dhaka-1208, Bangladesh. GPO Box No. 934, Dhaka-1000.

Editor : M. Shamsur Rahman
Published by the Editor on behalf of Independent Publications Limited at Media Printers, 446/H, Tejgaon I/A, Dhaka-1215.
Editorial, News & Commercial Offices : Beximco Media Complex, 149-150 Tejgaon I/A, Dhaka-1208, Bangladesh. GPO Box No. 934, Dhaka-1000.

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