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6 November, 2019 00:00 00 AM / LAST MODIFIED: 6 November, 2019 12:16:29 AM
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Anti-progeria campaign launched

“Progeria is a very rare disease that many people don’t recognise.”
STAFF REPORTER, Dhaka

The Progeria Research Foundation (PRF; www.progeriaresearch.org), the only organisation in the world dedicated to discovering treatments and the cure for children with Progeria, on Monday launched ‘Find the Children - 10 in Bangladesh with Progeria’ campaign in social media, facebook and twitter, says a press release. The campaign is designed to create awareness among the general public and healthcare providers, in order to locate and assist children with this rare and fatal rapid aging condition. Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS) is a rare, fatal genetic condition characterised by the appearance of accelerated ageing in children.

President and Executive Director of PRF Audrey Gordon said, “In order to help the children, we have to find them. Locating and assisting them is the goal of our international ‘Find the Children’ campaign. Progeria is a very rare disease that many people don’t recognise. Bangladesh is a country with nearly 165 million people. Statistically, this means we expect approximately ten children with Progeria are living there.  We’re launching our ‘Find the Children – 10 in Bangladesh with Progeria’ campaign to raise awareness and help us locate these special children throughout Bangladesh, to help provide them with the unique care they need. We can connect them with other families, provide treatment recommendations, give them an opportunity to join clinical treatment trials, and give them access to a drug that may improve their cardiovascular status and extend their lives.”

For more from Audrey Gordon, watch this video:  https://youtu.be/6KThQAkKw-c

 

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Published by the Editor on behalf of Independent Publications Limited at Media Printers, 446/H, Tejgaon I/A, Dhaka-1215.
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Editor : M. Shamsur Rahman
Published by the Editor on behalf of Independent Publications Limited at Media Printers, 446/H, Tejgaon I/A, Dhaka-1215.
Editorial, News & Commercial Offices : Beximco Media Complex, 149-150 Tejgaon I/A, Dhaka-1208, Bangladesh. GPO Box No. 934, Dhaka-1000.

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